Fordyce Spots Support Forum
Email from sebacia! - Printable Version

+- Fordyce Spots Support Forum (http://www.fordycespotsforum.com)
+-- Forum: Fordyce Spots / Sebaceous Prominence (/forumdisplay.php?fid=3)
+--- Forum: Treatments and home remedies (/forumdisplay.php?fid=5)
+--- Thread: Email from sebacia! (/showthread.php?tid=91096)


Email from sebacia! - Brit90 - 06-09-2018 12:00 PM

There should be an attachment to this post showing the original email in PDF form.


Cory Anderson <canderson@tif.net>
11:05 PM (13 hours ago)
to me
Hi James,



Thank you for your inquiry about Sebacia. You have clearly done your homework to make the connection between using the Sebacia product for Sebaceous Hyperplasia. We are not yet FDA approved and our initial indication will be an indication for acne. However, we are thinking about a clinical study in southern California to begin in the late summer or early fall for Sebaceous Hyperplasia. Please let me know if you live near there and would like to be connected to the clinic.



Kind regards,
Cory Anderson

VP Sebacia, Inc.


James Baird <jamesdmbaird@gmail.com>
12:55 PM (3 minutes ago)
to Cory
Dear Cory,

That is fantastic news. If i lived in America i would 100% be involved in that study!

Sebaceous Hyperplasia is an awful condition that has affected a huge number of people. My specific condition is more often referred to as Fordyce spots, and is a proliferation of sebaceous Hyperplasia around the genitalia. You simply cannot imagine how devastating this is to the individuals affected, and has contributed to real life altering results due to the psychological tole.

It is simply astonishing that this condition has been widely ignored by the dermatological community. I think companies like Sebacia have a real opportunity to provide the first effective treatment for the condition.

Just to inform you i will be posting your email to me on a small forum dedicated to those suffering from Fordyce. We don't often hear of big companies or scientists getting involved in this research so as you can imagine it is a pretty big deal!

http://www.fordycespotsforum.com/

Kindest Regards,

James Baird


RE: Email from sebacia! - Em3112 - 06-11-2018 07:02 AM

You are talking about this company I assume? https://www.prnewswire.com/news-releases/sebacia-announces-36-million-equity-and-debt-financing-to-advance-breakthrough-in-office-procedure-for-acne-300492918.html

Their technology sounds interesting.


RE: Email from sebacia! - renan - 06-11-2018 09:56 AM

Hi,

Can you add me also on that furom?thanks a lot
Hi @sebacia,


Can you give me also update and add me on that furom, because i have fordyce spot on my lips.


RE: Email from sebacia! - Brit90 - 06-11-2018 07:47 PM

yes that is the same company. I have been tracking their progress for a number of years now.

Very exciting to see that they are looking into sebaceous hyperplasia!

Im not sure what your asking renan? keep checking on fordycespotsforum.com.... any updates and i will let everyone know on here.


RE: Email from sebacia! - NoSpots2018 - 06-27-2018 06:35 PM

where did you find the link or page to email him at ? I live close to there and would participate in it


RE: Email from sebacia! - Brit90 - 06-28-2018 07:44 PM

quick update. I have been contacted by a clinic in London that may potentially treat my SP with Sebacia micro particle treatment. Quiet out of the blue they have offered me to come in and have free treatment in exchange for being a training model for the new treatment. I have booked a consultation on the 9th of July to see if i am a suitable candidate.


RE: Email from sebacia! - Em3112 - 06-29-2018 07:14 AM

That is good news! the 9th of July is pretty quick already. Keep us informed please!


RE: Email from sebacia! - ArnoldRingele - 07-10-2018 11:47 AM

Any updates?


RE: Email from sebacia! - Brit90 - 07-15-2018 08:05 PM

yes. Unfortunately the doctor was unfortunately not willing to help me. He didn't state that it wouldn't work in principle, just that he was concerned over the risk involved. he referred me to another doctor who has also stated that he is not willing to help.

essentially because this is a new treatment, no doctor is willing to go outside of its recommended use of treating acne on normal skin. When you start asking them to test it on your genitals, they say no. Obviously this was inevitable but at least i tried.

sorry guys
i'll keep searching


RE: Email from sebacia! - toto - 08-12-2018 01:11 PM

(07-15-2018 08:05 PM)Brit90 Wrote:  yes. Unfortunately the doctor was unfortunately not willing to help me. He didn't state that it wouldn't work in principle, just that he was concerned over the risk involved. he referred me to another doctor who has also stated that he is not willing to help.

essentially because this is a new treatment, no doctor is willing to go outside of its recommended use of treating acne on normal skin. When you start asking them to test it on your genitals, they say no. Obviously this was inevitable but at least i tried.

sorry guys
i'll keep searching

Brit, what about asking to try on the lips?
will they say no too?

thanks